Bartha Maria Knoppers


Affiliation : Université McGill
Organization : Centre de génomique et politiques
E-mail : bartha.knoppers@mcgill.ca
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About Bartha Maria Knoppers

Pr. Bartha Maria Knoppers (Comparative Medical Law) holds the Canada Research Chair in Law and Medicine. She is Director of the Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University.


In 2007, she founded the international Population Project in Genomics and Society (P3G) and CARTaGENE Québec’s population biobank (20,000 indiv.). Former holder of the Chair d’excellence Pierre Fermat (France: 2006-2008), she was named Distinguished Visiting Scientist (Netherlands Genomics Initiative) (2009-2012) and received the ACFAS prize for multidisciplinarity (2011). She is Chair of the Ethics Working Party of the International Stem Cell Forum (2006-), Co-Chair of the Sampling/ELSI Committee of the 1000 Genomes Project (2008-) and a member of the Scientific Steering Committee of the International Cancer Genome Consortium (2009-).

 

She holds four Doctorates Honoris Causa, is Fellow of the American Association for the Advancement of Science, of The Hastings Center (Bioethics) and of the Canadian Academy of Health Sciences (CAHS) and Officer of the Order of Canada and of Québec. Former Chair of the International Ethics Committee of the Human Genome Project (HUGO), (1996-2004), she was a member of the International Bioethics Committee of the United Nations, Educational, Scientific and Cultural Organization (UNESCO) which drafted the Universal Declaration on the Human Genome and Human Rights (1993-1997). In June 2012, she received the Prix Montréal InVivo : secteur des sciences de la vie et des technologies de la santé.



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